BBC Health Bacaan 1 menit

There's finally a treatment for my five-year-old's dementia - but it'll cost me £3m

There's finally a treatment for my five-year-old's dementia - but it'll cost me £3m
Image caption, Tate's mum Tammy McDaid needs £3m for life-saving treatment for her child

The mum of a five-year-old boy with a rare form of dementia has to pay almost £3m for his life saving treatment.

Tate McDaid, from Swansea, was diagnosed with Sanfilippo Syndrome - a form of dementia that just over 100 UK children have - when he was four.

In September, the first gene therapy to treat the condition in children was approved in the US.

His mum Tammy said she spent "months praying" for its approval but discovered the treatment is to set cost £2.95 million per child, with it unclear how families outside the US can fund this.

Health officials from Wales are currently talking to those in the US to see what potential access pathways there are for Tate.

Lanjutkan membaca di BBC Health

Kutipan awal dari BBC Health, ditulis oleh Danielle Herbert. Hak cipta artikel milik penerbit.

Berita lainnya untuk Anda